Thursday, May 17, 2012

Life is just crazy busy!

Sorry I haven't updated in a while.  It has literally been crazy around here.  And busyCrazy busy!!

In case you haven't checked in for a while, I'll try and give you a quick recap.
  • Chris' company was bought out by Web.com, a company based out of Jacksonville.   They have closed the St Louis area office.  We have to relocate to Jacksonville no later than June 31st.
  • We went to Jacksonville over spring break.  After an exhaustive online search, being outbid on an offer on a house and seeing six million houses in person, we went with a new build.  Our house should be finished this week.
  • We got back from Jacksonville and Mom had to go in for a biopsy.  We feared Lymphoma.  Two days later she was diagnosed with Small Cell Lung Cancer.  Just when we got over our initial shock, we found out that her cancer has spread to her brain.  We go to the hospital every single day.  Either for Chemotherapy or Radiation.
  • Mom is moving to Las Vegas to live with Danielle.  Danielle came out here two weeks ago, and in a marathon session we packed almost the entire house.  We somehow have to coordinate the move with her treatment schedule.
  • Chris is out of town, more than he is home at the moment.  As much as I am panicked about moving in 30 days, I am looking forward to him actually living with us again, instead of dropping in for clean laundry on the weekends.
  • Did I mention that our current home is practically unsellable in this market?  Can't wait to have 2 mortgage payments!  (*sarcasm*)

So here's whats going on with mom.

April 24th - Mom was supposed to get a port inserted today but was feeling way too sick.  She will decide later if she wants to reschedule or continue having IV's inserted each time she has treatment.

April 28th - Danielle and Kenzi arrived from Las Vegas and Charlotte arrived from North Carolina.  She knew Charlotte was coming, but Danielle and Kenzi were a total surprise.  Thanks Dad for flying them in!

May 2nd - After a few days of radiation, mom's hair started falling out in big clumps.  Strangely enough, it apparently hurts when your hair falls out.  So Danielle, Charlotte and I went with mom to a wig shop.  She bought a real hair wig similar in style to her own hair.  The next day she decided to cut off all her hair.  Although it it obviously a very big change, she at least felt like she had some control over the situation.

May 7th -  She started her second round of Chemo.   This round really kicked her butt.  Maybe because she was also having radiation at the same time?  Or maybe because they say each round of chemo hits you harder.  She has had a very hard time staying hydrated.  Her taste buds are definitely changing and she has an aversion to drinking water now.  Her poor veins are pretty shot and getting a port is becoming a necessity. 

May 11th - Made it through the week of Chemo but she is exhausted.  We saw the radiation doctor today.  Dr D.  They decided to give her Monday and Tuesday off from radiation to give her a little rest.  On Tuesday she will be having her port inserted. 

May 15th - A long day at the hospital for a half hour procedure but the port is inserted!  All went well and thankfully the pain is not too bad.  (Easy for me to say right?)   They used sedation rather than general anesthesia and that was much easier on her. The staff at the surgery center took wonderful care of her.  Her primary nurse was a breast cancer survivor and was super attentive and compassionate.  The radiation nurse called us and told us to come in on Thursday and that would give mom an extra day to recover from the surgery.

May 16th - Mom called me at 10 o'clock to see where I was.  We are so used to going up to the hospital every single day, that she forgot she had the day off!

May 17th - She resumed radiation today.   Her radiation up to this point has been a more broad type of radiation that targets a perimeter around the existing cancer cells.  The idea is, that is will prevent any more cancer from forming and killing off anything that is too small for them to see.  Today they switched her to Tomotherapy.  This is a more targeted form of the radiation.  The has three more days of this, so there is an end in sight as far as brain radiation goes.

Next cycle of chemo is May 29th.  She is very much dreading it as the second cycle hit her so hard.  Thankfully she does have the port now so it won't require multiple sticks to get an IV in.  After the third cycle is complete she will have an MRI and PET Scan to see how she is responding.

She is doing a great job of trying to take this all day by day.  Forgive her if you call and she doesn't answer.  The fatigue is pretty overwhelming right now.  If you would like to send a card or a message (she really appreciates hearing from everyone) just send me a message and I will send you her address.

So that's it for today - and we'll do it all over again tomorrow!

2 comments:

Charlene said...

im sure you're sick of hearing my thank yous :) about your unsellable house, join my club, same thing is happening to me,i hav 2 mortgages until i sell my flat. we go to live in our house in september.auntie clara is blessed to have such dedicated daughters, im sure thats a big plus for her. love and prayers to all always xxxxx

Clair said...

Charlene,
It means so much to her to know that you are in her corner, rooting for her and thinking of her. You have always held a special place in her heart.

I hope you manage to sell your flat soon - we may have renters for our house - keep your fingers crossed.

Hope you are feeling well and taking good care of yourself. Try not to stress too much!

Love to you all
Clair